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have we mentioned lately how MUCH cancer SUCKS!?!?!?!??!?!!?!??!?!?!?!!


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#2401 Jersey Thug

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Posted 22 December 2012 - 03:57 PM

you're so right Nancy, we are SO worth it :heart: and i love you and am so proud to call you my friend. hang in there dollface. :kissing:

#2402 twilight dancer

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Posted 23 December 2012 - 04:37 AM

Jesus. I didn't know you did this, mama.... I'm on dilaudid and percosets for a month and miss all the gossip.
I hope you feel better....
I am glad you got the other one taken care of. So much. Stupid boobs.
xo


and yes- everyone- PLEASE- go get yourself checked- even if you aren't at risk.
please please please.
I never imagined I would ever be that lady, either.

#2403 Joker

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Posted 24 December 2012 - 02:09 PM

:heart:

#2404 Karen

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Posted 24 December 2012 - 02:23 PM

Hiya Nancy :)

Hope you are feeling as well as you can be today! XO

#2405 nancykind

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Posted 25 December 2012 - 08:31 PM

doing okay! the percocets actually seem to be knocking me out this time around so i have been sleeping a lot, and now my modem at home is broken so i have no internet until thursday. i'm in some pain to be sure but not as bad as last time. and yes TD, boobs are stupid. i'd have loved to have kept 'em if they hadn't tried to kill me - kind of a deal breaker though.... :tongue1:

thanks for the good wishes! :heart:

#2406 orion

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Posted 25 December 2012 - 11:01 PM

Merry Christmas Nancy!

#2407 sarah b.

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Posted 26 December 2012 - 12:16 AM

:) <3

#2408 Tim the Beek

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Posted 26 December 2012 - 02:25 PM

<3

#2409 joecool

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Posted 31 December 2012 - 04:56 PM

nancy-nanc! hope all is well in your world! i am wishing you a fabulous, wonderful, beautiful, peaceful, happy new year!!! may this year bring you great things! and sending all the love and good vibes i can muster!

#2410 Karen

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Posted 31 December 2012 - 04:59 PM

Hey Nancy! Wishing you a happy new year!

#2411 nancykind

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Posted 31 December 2012 - 06:08 PM

less than 12 hours to go for a new year to begin! :crazy: i didn't make any plans and will probably be asleep before midnight, or will have napped and woke up in time :funny1: but i was given a bottle of champagne for christmas with instructions and as soon as the nurse that checks up on me leaves, i'm opening it! :D

i'm doing okay though, it freakin' HURT when he took the drain out last week, compleeeeetely different than when it was in for the 3 weeks last time and it came out on the 7th day. :shocked: ouch, anyway. i gave a huge gasp and then couldn't exhale and just lay there for a good 10 or 15 seconds with my breath held. whewwww. even the staples didn't hurt like that drain did. so that put me back on the painkillers for a few days which i wasn't expecting to need, there is a LOT of tube inside where you'd think it's no more than 8 or 10 inches long. he did another good job and it's pretty matchy matchy though not perfectly so. i did notice today that there are already spots on the left where you can't see any scar whatsoever. which is no less than amazing when i think about how it's done. for my part, mostly i just brushed on straight vitamine e oil.

slept in my bed last night for the first time and it was not very comfortable so i might stay in the recliner for another night or two. i do feel improvement but when i do something that hurts? oh my goodness does it ever hurt. i will probably go back to work on thursday. no lifting, no yoga, no zumba, no nothin' till mid-january. i hope to walk some, but haven't gotten out there yet i'm only just starting to be able to really tolerate the impact of even that much. even the extra little impact of going down some stairs came with extra pain at one point, too - just one more thing i'd never notice unless!

and my pigeon strips are working GREAT. they don't land on my roof anymore but all of sudden there's a ton of CROWS. in the yard and in the trees :joker: yes, the neighbors are feeding scavenger birds. :facepalm:

oh! my nurse is here! :)

#2412 Jersey Thug

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Posted 31 December 2012 - 09:22 PM

happy new year Nancy! wishing you peace, health and happiness throughout :heart: :)

#2413 nancykind

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Posted 01 January 2013 - 06:13 PM

few other random updates.......

slept in my bed better last night. will have to be careful for a long time, but it's doable, anyway :thup:

i definitely have a permanent tan on the left and it's sort of mottled browns, more noticeable in some spots than in others. the radiation tattoos are visible, they are blue and it looks like i jabbed myself with an uncapped pen. at some point in my lifetime someone WILL try to wipe the pen mark off or at least point it out to me so that i can do so myself. :plain:

my armpit hair never came back. at some point i had one hair on each side and i pulled them both out and they haven't come back. :funny1:

my upper eyelashes are shorter than they used to be but the lower ones came in exactly the same. eyebrows are a little more sparse and they weren't very thick to begin with!

my big toenails are still coming in, that last one decided to lie back down and ride it out but i don't think i've had to cut it in months so it's not growing yet either. the big ones are only about half grown in - they sure do take their time.... :tapfoot:

my fingernails are all normal again except for the thumbnails but they're coming in too, again, very slowly. another couple of months and i should be able to cut the last of the dead part off.

the neuropathy is......... much better..... but not gone. just my tippy tips of the fingers and a little more in the thumbs than the fingers and a little in the toes and the balls of my feet still. i hope, and i believe, that it will continue to improve.

since that last surgery my heart rate has been low. around 50-52 beats per minute where i'm normally 60-72 if i remember correctly. the county nurse even got a reading of 48 yesterday, and then a 50 when she tried again. when i get more active i'm curious to see if it comes back up but in the meantime, it's kinda weird. :huh:

i'm still having a lot of trouble swallowing so will need to get that looked into with an ENT doc i guess. it's very odd, isn't getting any better with the healing of the thyroid, although it's higher up than that this time anyway, it's somewhat painful and sometimes i can barely swallow. will call my primary tomorrow and discuss. :dunno:

my hair grows so fast i swear i can see a difference virtually every day. it's curly in most spots, still dark in color, and i still have the swirly. :) it's coming in a little unevenly, long and thick and pretty straight on top (that mohawk thing, still), short and thinner and sort of curly in that halo around the middle of the head area, then long and very curly below that. nooo idea why that one area grows so much more slowly. it's not really very obvious, just weird. at this length, there is no way to disguise the fact that i haven't showered/washed my hair yet that day. :grin:

Jason, i have plans for my cranes. :wink: will get pics once i get it done, i'm not quite up for the task just yet. i spent a lot of time trying to decide what i would do with them - not to mention the when, with it being one thing after another since then - and i think you'll approve. :heart: :crazy:

being a survivor is hard. harder than i thought it would be. only sometimes do i wish i were better at sticking my head in the sand though, for the most part i'm glad to think things through and to pay attention to what i'm feeling. i don't want to ignore things that do matter. somehow, i will learn to walk that too-fine line. i'll continue to make changes that i think are good for me and i know that it will get better and easier as time goes on.

i was looking through this thread today and really, just can't even express, how much you all mean to me, how astounding this community is, how miraculous it is how it was formed, how it's changed over the years but is still wonderful. how much i love you, boardies. thank you more than words can ever say, thank you for all you've done to help me through this year, thank you for being each of you. :) :heart:

#2414 Jersey Thug

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Posted 01 January 2013 - 06:34 PM

we love you back, Nancy, so so much. and Jason and i can't wait to see what you've decided to do with the cranes! :bouncey:

thank you for that lift today, it made us both smile!

#2415 china cat

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Posted 01 January 2013 - 08:16 PM

(((nancypants))))

#2416 scarfire

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Posted 01 January 2013 - 11:58 PM

happy 2013 nancy! :angel:

#2417 Karen

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Posted 01 January 2013 - 11:59 PM

That heartrate is one of an athlete...I mean like a marathon runner! Since the past year has been a marathon for you, that might explain it? jk...I would follow up on that with the doctor. That is awfully low and maybe has to do with your thyroid... Hope you find out what the cause of the swallowing thing is. Hopefullly it's just leftover trauma from surgery!

:heart:

#2418 twilight dancer

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Posted 02 January 2013 - 02:00 AM

rock on.


Someone told me the best thing to do is make a survivorship plan- it makes being a survivor easier to cope with and keeps you warm when you feel like you might be out in the cold.
It is definitely a scary spot though. Much love. I'm always here if you wanna talk about the boob stuff and how dumb they are. <3
I wouldn't know where to go for the best resources for making a plan though. Nobody told me that part. Google is where I've been.
wish you the best.
(((((swirlies)))))

#2419 Lemireacle

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Posted 02 January 2013 - 02:04 AM

Much love to you both, Nancy and Brianne!! :heart:

#2420 sarah b.

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Posted 02 January 2013 - 02:05 AM

Love, love, love.

#2421 Gwendolyn

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Posted 04 January 2013 - 08:17 PM

dropping by to send good vibes - glad to hear all is going well - Happy New Year! and smiles for a great year a head! PEACE

#2422 nancykind

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Posted 26 January 2013 - 05:10 AM

happy new year to you too!  sorry i haven't checked m'own thread!  :spank:    here's my more complete update for those who have been asking, well, and i guess for those who haven't :funny1: it's a lot easier to type it once.  :)

 

 and reading through parts of this thread is mind blowing all over again, i must say...

 

fuuuun volunteer gig tonight!   it was pink night at the hockey game and i got to drop the ceremonial puck at the beginning of the game.  the players wore pink jerseys and after the game a survivor and a player walked out on the ice together with the shirt and auctioned it off on behalf of my cancer center's programs.  people pay a LOT of money for these shirts.  it was really fun and everyone was awesome and i had a great time and we raised lots of money.    :)  

 

so - blood work next week and an onco visit on the 6th.  i'm supposed to be all gung ho positivity with that last surgery out of the way, and i think i am for the most part for sure, yet as glad as i am that i had it and i am, really glad, i can't say there aren't some odd things going on.  so i'll be interested to see the blood work results.   but i'm still chugging along here.  work is going all right, i'm STILL catching up but it's coming along and i can see tremendous progress.   i still get pretty tired but started my classes up again 2 weeks ago.   some nights i come home, take a 2 minute shower, chug a bottle of water and go right to bed.  but i'm good at taking my vitamins and have been eating well.   always room for improvement with me of course but doing pretty well.  nails are growing slowwwwwly and the toenails are very sensitive again.    my hair is super curly on the sides and in the back, i'll have to upload a pic one of these days.  i look a bit like my mom.  :funny1:     i still have the grey swirly but it's long enough that it lies right along the front.  the rest is pretty dark.  the neuropathy seems to have improved to a point and stayed there but it's not intolerable and i was even wearing shoes again for a little while there.  it's only the toenails that made me have to go back to birks again at work.  fortunately my winter boots have big boxy toes and they're okay too.   it is off to bed for me, it's late!     trey tomorrow, hope to see some of you there!  



#2423 sarah b.

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Posted 26 January 2013 - 06:03 AM

Sweet dreams and continued healing, Nancy. :)

#2424 pixiebug

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Posted 26 January 2013 - 02:56 PM

Have a great show tonight!



#2425 In A Silent Way

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Posted 26 January 2013 - 03:00 PM

w00t!



#2426 Karen

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Posted 26 January 2013 - 04:04 PM

(((Nancy)))

 

 

:)



#2427 TEO

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Posted 26 January 2013 - 04:22 PM

:heart:



#2428 Beany

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Posted 26 January 2013 - 05:22 PM

i like curly hair :)



#2429 ladygingechilla

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Posted 29 January 2013 - 02:22 AM

Thanks for the update.  Thinkin' about ya!
(and can't wait to see some shmexy mohawk #1s)

:wink:



#2430 nikkiblue

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Posted 29 January 2013 - 02:26 AM

<3    I havent followed this thread as closely as I would like, but I think about you every day, nancy. <3 



#2431 joecool

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Posted 30 January 2013 - 08:08 PM

nancy darlin!!  thanks for that update!  i haven't been here in a while either....but then again, it's not my page! :funny1:

 Hope you had a great time at the show!  see ya!!!!!!!  love ya!!!!!



#2432 nancykind

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Posted 31 January 2013 - 02:12 PM

thank you :heart:

 

sioooooooooooooo, exactly ONE YEAR ago

at 8:50am

i received my diagnosis

 

:panic:

 

i am a one year survivor.   

 

:elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant:  :elefant:  :elefant:



#2433 scarfire

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Posted 31 January 2013 - 02:53 PM

happy anniversary does not seem appropriate nancy - but it is great to put one full year between that awful day!

 

keep up the good work.   :bigsmile: 



#2434 Karen

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Posted 31 January 2013 - 02:56 PM

:cheerleader:

 

 

Go YOU!!



#2435 TEO

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Posted 31 January 2013 - 03:20 PM

Whoo-Hoo!   Keep on shining your lovelight.   :heart:



#2436 Tim the Beek

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Posted 31 January 2013 - 04:24 PM

thank you :heart:

 

sioooooooooooooo, exactly ONE YEAR ago

at 8:50am

i received my diagnosis

 

:panic:

 

i am a one year survivor.   

 

:elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant: :elefant:  :elefant:  :elefant:

 

 

<3 <3 <3



#2437 tyedyedee

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Posted 31 January 2013 - 04:27 PM

that calls for an emoti-poem:

 

:jump:

:ura1: :ura1: :ura1: :ura1:

:rose: :clapping: :rose:

:ura1: :ura1: :ura1: :ura1:

:jump:



#2438 Joker

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Posted 31 January 2013 - 04:27 PM

:yaya:



#2439 joecool

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Posted 04 February 2013 - 09:23 PM

you go girl!  keep it up! :bouncey:



#2440 sarah b.

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Posted 06 February 2013 - 02:58 PM

:jam: <3 :dance:

#2441 In A Silent Way

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Posted 06 February 2013 - 03:33 PM

WOOHOO!!!

 

>^:heart:^<



#2442 August West

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Posted 06 February 2013 - 03:39 PM

:heart:

 

many more years!



#2443 georgi

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Posted 06 February 2013 - 03:44 PM

Love you Nancy! :heart:



#2444 nancykind

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Posted 07 February 2013 - 11:38 AM

love you, as well.  :) :heart:

 

numbers were all good except the thyroid, which i was expecting.   turns out i was very slightly hyperthyroidic before the surgery, now i'm pretty hypothyroidic.   i'm starting with a low dose of synthroid and will check levels in 3 months.    i look forward to having better energy and being able to lose some of the weight i've gained.   :tongue:

 

the swallowing issue is actually swollen saliva glands and is probably a result of chemo and radiation.   boooooo.   that means it might be permanent.   there was some redness and irritation around the vocal chords which could be from a couple of different things so i'm doing some mulling on that for now.  it's nothing bad though, which is good. 

 

overall a decent follow up and visit with the ENT yesterday.   onward.    :thup:



#2445 August West

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Posted 07 February 2013 - 11:43 AM

 there was some redness and irritation around the vocal chords which could be from a couple of different things

 

 

will this effect your singing voice?



#2446 nancykind

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Posted 07 February 2013 - 08:41 PM

only for the better.   :tongue1:



#2447 scarfire

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Posted 07 February 2013 - 08:45 PM

 onward.    :thup:

 

that's the keyword there nancy - sounds like a positive step forward!



#2448 gram-man

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Posted 07 February 2013 - 11:57 PM

Keep strong Nancy!!!

LOVE YOU!!!!!

#2449 Nuthatch

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Posted 08 February 2013 - 04:38 AM

Hi Nancy,

 

I haven't been around for awhile and it is heartwarming to read words like "good"', "better", "decent", "positive", etc.  Congrats on your one year survivor milestone! 

 

Lots of  :heart:



#2450 joecool

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Posted 13 February 2013 - 08:38 PM

me love you long time!