have we mentioned lately how MUCH cancer SUCKS!?!?!?!??!?!!?!??!?!?!?!!
Started by
nancykind
, Feb 01 2012 03:58 AM
2536 replies to this topic
#2205
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- VibeTribe
- 2,747 posts
Posted 13 September 2012 - 11:03 AM
mornin! how's life in nacyland this morn? hope all is as well as can be expected. hope you don't have any pain or discomfort. i'm so happy you've made such progress in this journey of yours! you are amazing, and a great example to all of us how to handle life when it hands you such a challenge! i only hope i'll be able to handle even the little things as well as you handle the massive things you have to deal with!
thanks for being you, and letting us share that! love ya!
thanks for being you, and letting us share that! love ya!
#2208
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- VibeGuide
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- 14,143 posts
VibeGuide
Posted 13 September 2012 - 04:51 PM
thanks for the cards, LOVED getting them!! and sarah, i don't think it matters what you choose, the paper it prints on is whatever is in the printer but i've never seen a piece of stationery that pertained to the specific choice that you make. easier for them of course, but then why offer it. 
so i have half a thyroid, more good news. unfortunately they never gave me the ice pack in recovery that they were supposed to yesterday, so the area is pretty f'ing swollen by now. i have to sleep upright, i'm not supposed to bend over even to tie shoes, no heavy lifting and watch for infection. it's even harder to swallow now and it's sore, not gonna lie.
and my port is gone, yayyyy!!!
there's a good sized painful hole where he pulled it out but there's no stupid poking way out of the skin big painful lumpy bump anymore. yayyyy!!!!
and the burns are about the same. still putting cream on, didn't sleep well at the hospital last night so that area is irritated again today. oh, and while i have half of a giant 1lb jar of the stuff left i'm not supposed to bring anything from home. instead, the surgeon has to prescribe it, they supply a tube of the stuff and charge for it!!
and every time i put it on i'm supposed to have them scan the barcode into the system, even in the middle of the night. kinda ridiculous. if you insist on using your own they have to confirm it with the original prescribing doc AND the pharmacy it came from. kinda ridiculous - for a burn cream.
the surgery went well though, the quick testing showed benign and i'll call for the final pathology on tues morning. apparently i got the shakes coming out of the anesthesia again because i had these space blankets taped to me when i woke up (which took me 2 hours!) and i was packed with the regular blankets too. so that's why/when they forgot the ice pack i guess. and then another hour after that, shortly after i got into my room, i started to feel sick and threw up. so they ended up giving me something for that, too. and whoever put the airway in smashed my teeth into my lip and i have a big sore inside my upper lip. 
the new rooms at the hospital are nice. big, lots of chairs for visitors including a recliner, i had the vegetarian meals and they were okay/pretty good. kinda sorry i missed lunch, i ordered the veggie/cheese/fruit platter and a cookie.
tons of lighting options but no way to control the light behind/over the bed without getting up out of bed. and the best invention everrrrrrr?? the large comfortable remote that handles the call button functions (with separate water, pain and toilet buttons!) AND the television - - including the speaker!! no more hearing everyone's damn televisions from my room. 
every single nurse, orderly or housekeeper person i met/saw/spoke with/worked with was great.
and i am going to take a nap now. only slept 3 hours yesterday/last night, probably because of the percocets. fortunately, i am not taking them every 4 hours too! ahhhhhhhhhhhhhh, home sweet home!
AND I AM DONE!!!!!!
so i have half a thyroid, more good news. unfortunately they never gave me the ice pack in recovery that they were supposed to yesterday, so the area is pretty f'ing swollen by now. i have to sleep upright, i'm not supposed to bend over even to tie shoes, no heavy lifting and watch for infection. it's even harder to swallow now and it's sore, not gonna lie.
and my port is gone, yayyyy!!!
there's a good sized painful hole where he pulled it out but there's no stupid poking way out of the skin big painful lumpy bump anymore. yayyyy!!!! and the burns are about the same. still putting cream on, didn't sleep well at the hospital last night so that area is irritated again today. oh, and while i have half of a giant 1lb jar of the stuff left i'm not supposed to bring anything from home. instead, the surgeon has to prescribe it, they supply a tube of the stuff and charge for it!!
and every time i put it on i'm supposed to have them scan the barcode into the system, even in the middle of the night. kinda ridiculous. if you insist on using your own they have to confirm it with the original prescribing doc AND the pharmacy it came from. kinda ridiculous - for a burn cream. the surgery went well though, the quick testing showed benign and i'll call for the final pathology on tues morning. apparently i got the shakes coming out of the anesthesia again because i had these space blankets taped to me when i woke up (which took me 2 hours!) and i was packed with the regular blankets too. so that's why/when they forgot the ice pack i guess. and then another hour after that, shortly after i got into my room, i started to feel sick and threw up.
so they ended up giving me something for that, too. and whoever put the airway in smashed my teeth into my lip and i have a big sore inside my upper lip. the new rooms at the hospital are nice. big, lots of chairs for visitors including a recliner, i had the vegetarian meals and they were okay/pretty good. kinda sorry i missed lunch, i ordered the veggie/cheese/fruit platter and a cookie.
tons of lighting options but no way to control the light behind/over the bed without getting up out of bed. and the best invention everrrrrrr?? the large comfortable remote that handles the call button functions (with separate water, pain and toilet buttons!) AND the television - - including the speaker!! no more hearing everyone's damn televisions from my room. every single nurse, orderly or housekeeper person i met/saw/spoke with/worked with was great.and i am going to take a nap now. only slept 3 hours yesterday/last night, probably because of the percocets. fortunately, i am not taking them every 4 hours too! ahhhhhhhhhhhhhh, home sweet home!
AND I AM DONE!!!!!!
#2221
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- VibeTribe
- 193 posts
Posted 14 September 2012 - 02:11 PM
Nancy I have not been able to get on the boards for a while now but Gramman kept me updated on how you were doing. I send you unlimited good vibes and hope you are resting and building up your strength! YAY For the port being out!! Those things suck and are annoying!
***big hugs and love***
***big hugs and love***
#2227
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- VibeGuide
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- 14,143 posts
VibeGuide
Posted 15 September 2012 - 11:33 AM
all i do is sleep and rest and i'm still just as tired. frustrating!! they said it would be like this for a couple of weeks and that then i'd gradually starting feeling more like i have some energy. looking forward to that!my acupuncturist who moved away is back for appointments this weekend, i am seeing her today at 4. she was only planning on doing one day but is booked for both today and tomorrow. we don't wanna let go!!!
truly though, she is remarkable and i'm looking forward to seeing her. lost another toenail at the podiatrist's yesterday. pinky toe on the left this time. 2 1/2 toenails left to go, i think the other few are going to hang tight. i was hoping they'd be all done by the time i needed socks again but that is not going to be the case so i'll have to be careful getting them on and off. the beau's lines are really distinct on some of my fingernails and i just keep telling myself that it doesn't matter how awful they look for the next several months. we'll see in a month or so if i actually believe myself... fingers and toes are still numb too - - i was hoping the neuropathy would just clear right up so that i didn't have to even worry about the possibility of its permanence. so i'll give it a couple more months yet.
thank you so much for the love and encouragement. this would have been all soooo much more difficult without you all believing in me and telling me i could do this. i love you all.
#2232
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- VibeGuide
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- 14,143 posts
VibeGuide
Posted 17 September 2012 - 03:06 PM
thank you! boardies have powerful vibes!
i have NO appointments and nothing scheduled today for the first time since july 23rd. craziness! i'm going to ship my lifeline back today. and i might go to the tai chi class at the hospital later, if i'm awake. i've switched my yoga night to weds but the new session doesn't start till next week.
things are feeling better. if i do something stupid, like bend over, i feel it in my neck right away. i had a few antibiotics in the cabinet and i started taking those because that port incision was starting to feel very suspicious and i didn't want another infection there. and the burns are... coming along. my acupuncturist recommended a chamomile tea with aloe and lavender oil in a spray bottle. i did a chamomile tea compress type thing yesterday and the boost area is amazingly better today, much less red. quite amazing from my perspective, i must say. not that it's pretty or anything, but there really is a marked improvement in burn level. neat.
i have NO appointments and nothing scheduled today for the first time since july 23rd. craziness! i'm going to ship my lifeline back today.
and i might go to the tai chi class at the hospital later, if i'm awake. i've switched my yoga night to weds but the new session doesn't start till next week. things are feeling better. if i do something stupid, like bend over, i feel it in my neck right away. i had a few antibiotics in the cabinet and i started taking those because that port incision was starting to feel very suspicious and i didn't want another infection there. and the burns are... coming along. my acupuncturist recommended a chamomile tea with aloe and lavender oil in a spray bottle. i did a chamomile tea compress type thing yesterday and the boost area is amazingly better today, much less red. quite amazing from my perspective, i must say. not that it's pretty or anything, but there really is a marked improvement in burn level. neat.
#2235
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- VibeTribe
- 8,831 posts
Posted 17 September 2012 - 10:46 PM
yay Nancykind...and dont think for a moment that your success in this battle is a random event. It's all coming to you as a result of all of the kindness you have given to so many over the years. you really are NancyKIND. Good luck with the healing left to do.
with love
Royal
with love
Royal
#2237
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- VibeTribe
- 14,443 posts
Posted 17 September 2012 - 10:57 PM
Ryan, you could not have said it any better. Nancy, I am so happy that you are done. I am amazed by your courage and spirit. You are truly an inspiration to us all. Wish I was there to give you this in person....{{{{{{NANCY}}}}}} 
#2242
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- VibeTribe
- 1,071 posts
Posted 18 September 2012 - 11:36 AM
Hey there Nancy.
Ease back into normal stuff. I imagine you feel ready (emotionally) to take on the world but your body has been through so much. It can take a year or more to get back to normal energy (says the woman who tried to hike up a mountain 3 weeks after finishing treatment
trust me but you go girl...gently )
Yay for done and benign and forward!
oodles of love
Ease back into normal stuff. I imagine you feel ready (emotionally) to take on the world but your body has been through so much. It can take a year or more to get back to normal energy (says the woman who tried to hike up a mountain 3 weeks after finishing treatment
trust me but you go girl...gently )Yay for done and benign and forward!
oodles of love
#2244
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- VibeGuide
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- 14,143 posts
VibeGuide
Posted 18 September 2012 - 12:52 PM
oooh, that sounds fun
they're saying pretty much end of year before i feel 'normal'. i believe them, but also think that the worst of the surgery recovery is over with too, so i'm looking forward to maybe not taking a nap in the afternoon and sleeping through until the next morning.
they're saying pretty much end of year before i feel 'normal'. i believe them, but also think that the worst of the surgery recovery is over with too, so i'm looking forward to maybe not taking a nap in the afternoon and sleeping through until the next morning.
#2245
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- VibeTribe
- 8,772 posts
Posted 18 September 2012 - 01:09 PM
oooh, that sounds fun
they're saying pretty much end of year before i feel 'normal'. i believe them, but also think that the worst of the surgery recovery is over with too, so i'm looking forward to maybe not taking a nap in the afternoon and sleeping through until the next morning.
now you can nap in the afternoon and wake up all confused about 4-4:30
