have we mentioned lately how MUCH cancer SUCKS!?!?!?!??!?!!?!??!?!?!?!!
Started by
nancykind
, Feb 01 2012 03:58 AM
2537 replies to this topic
#1857
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 25 July 2012 - 11:21 AM
sure wish i was still at Vibes!!! 
thank you sooooooo much Boardies!!!!
i bow to you all, you are simply stupendous. 
felt great through Vibes for the most part, with a little eventual help from percocets. the biking made me super tired, but eventually i found that if i didn't try to tear around on it like i had done in years past, and just rode it more slowly, that i did much better for much longer. so there's my lesson learned. you wouldn't think it would be so hard to figure this stuff out! 
as it had been, my knees would start out pretty good in the morning but be ouchy by nighttime. shouldn't have waited till friday to do something about it but still, i did well. 
i got to wear one of my sparkly dresses and one of the wigs on saturday, which was fun. little hot on the field, but fun. if i found myself yawning, i tried to rest and i also ate well. only lost 2 or 3 lbs. 
got home monday afternoon and had my 'dry run' for radiation yesterday. they were late calling me in but it went quickly. the nurse's visit took a lot longer afterwards but i had to leave for another appt so we can finish today if need be.
because today is round #1 of radiation, at 10:30 this morning.
don't want!!
(well, you know what i mean....)
i will think of you all while i'm there and know that you are on my side though, and that will help. i love you all.
thank you sooooooo much Boardies!!!!
i bow to you all, you are simply stupendous. felt great through Vibes for the most part, with a little eventual help from percocets. the biking made me super tired, but eventually i found that if i didn't try to tear around on it like i had done in years past, and just rode it more slowly, that i did much better for much longer. so there's my lesson learned.
you wouldn't think it would be so hard to figure this stuff out! as it had been, my knees would start out pretty good in the morning but be ouchy by nighttime. shouldn't have waited till friday to do something about it but still, i did well. i got to wear one of my sparkly dresses and one of the wigs on saturday, which was fun. little hot on the field, but fun. if i found myself yawning, i tried to rest and i also ate well. only lost 2 or 3 lbs. got home monday afternoon and had my 'dry run' for radiation yesterday. they were late calling me in but it went quickly. the nurse's visit took a lot longer afterwards but i had to leave for another appt so we can finish today if need be.
because today is round #1 of radiation, at 10:30 this morning.
don't want!!
(well, you know what i mean....)i will think of you all while i'm there and know that you are on my side though, and that will help.
i love you all.
#1868
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 25 July 2012 - 05:15 PM
you guys rock.
it went okay this morning, was there for only a 1/2 hour or so. i felt like my skin warmed up underneath the thing they put on me, but i'm not sure. i put the stuff on afterwards anyways, might as well start right away.
sadly, Cassady took a turn for the worse while i was gone and i just spoke with the vet. he's going to put up an appetite stimulant pill for her but there is really nothing we can do, because it's the fip disease just progressing, as it was going to do no matter what.
she is happy i am home again and i shut everyone out of the bedroom for the overnight last night which i think she appreciated. she is not in pain. i don't know for how long - or if - this pill will work and i think i am down to days or even a week or so perhaps. i will feel badly if my sister comes home this weekend and feels like she needs to help me deal with this next week though.
i did notice Cassady was drinking a lot of water before i left. not more often, just a lot at a time. didn't think toooo much about it at the time, possibly denial, in hindsight..... and she will eat, she just won't go out of her way to eat, if that makes any sense. i bought her a chicken at the supermarket last night and she perks right up for that. she also ate some canned food and some of the dry food with a little warm water added today. but she has no energy and doesn't feel 'good' i think...
crap.
it went okay this morning, was there for only a 1/2 hour or so. i felt like my skin warmed up underneath the thing they put on me, but i'm not sure. i put the stuff on afterwards anyways, might as well start right away.
sadly, Cassady took a turn for the worse while i was gone and i just spoke with the vet. he's going to put up an appetite stimulant pill for her but there is really nothing we can do, because it's the fip disease just progressing, as it was going to do no matter what.
she is happy i am home again and i shut everyone out of the bedroom for the overnight last night which i think she appreciated. she is not in pain. i don't know for how long - or if - this pill will work and i think i am down to days or even a week or so perhaps. i will feel badly if my sister comes home this weekend and feels like she needs to help me deal with this next week though.
i did notice Cassady was drinking a lot of water before i left. not more often, just a lot at a time. didn't think toooo much about it at the time, possibly denial, in hindsight..... and she will eat, she just won't go out of her way to eat, if that makes any sense. i bought her a chicken at the supermarket last night and she perks right up for that. she also ate some canned food and some of the dry food with a little warm water added today. but she has no energy and doesn't feel 'good' i think...
crap.
#1873
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 27 July 2012 - 11:36 AM
awww, thanks. i'm soooo happy everything worked out and that i could go. i think i rocked it.
my plant is healthy and happy too, thank you for it.
Cassady is doing okay, she looooves to snuggle and loves having the door closed at night so that it's just the two of us. she cuddles all night long or jumps up in the window above my head and hangs out there. Diamond is very jealous of her and doesn't let her do these things so i think it's important that she gets to do so right now.
i haven't given her the appetite pill yet, she is eating the food i give her, seems to have a bit more energy and is jumping up on the bed and to the window with no trouble and is no longer spending a lot of time in the closet. still skinny but doing okay. i still think i'm counting, but maybe i'll get to count up to some double digits after all.....
#3 today. my armpit stings already. that isn't good. *sigh* oh welllll, it is what it is, is it not? need to get some of my aloe plant harvested today.
my plant is healthy and happy too, thank you for it.
Cassady is doing okay, she looooves to snuggle and loves having the door closed at night so that it's just the two of us. she cuddles all night long or jumps up in the window above my head and hangs out there. Diamond is very jealous of her and doesn't let her do these things so i think it's important that she gets to do so right now.
i haven't given her the appetite pill yet, she is eating the food i give her, seems to have a bit more energy and is jumping up on the bed and to the window with no trouble and is no longer spending a lot of time in the closet. still skinny but doing okay. i still think i'm counting, but maybe i'll get to count up to some double digits after all.....
#3 today. my armpit stings already. that isn't good. *sigh* oh welllll, it is what it is, is it not? need to get some of my aloe plant harvested today.
#1874
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- VibeTribe
- 8,116 posts
Posted 27 July 2012 - 12:04 PM
Thinking good thoughts for ya today and everyday Nancy!! Thinkin some for Cassidy too
Best part of my weekend was the great big hugs I got from ya everytime I saw ya! You looked so happy all weekend. Even when you were tired you were smiling.
Hope today's treatment goes smoothly and the stining goes away soon!!
Terry, not sure how ya missed it but I was wearing this shirt all day Thursday:
http://www.gathering...post__p__295380
Thinkin some for Cassidy too Best part of my weekend was the great big hugs I got from ya everytime I saw ya! You looked so happy all weekend. Even when you were tired you were smiling.
Hope today's treatment goes smoothly and the stining goes away soon!!
I think I missed a whole "champian" thing....
Terry, not sure how ya missed it but I was wearing this shirt all day Thursday:
http://www.gathering...post__p__295380
#1875
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- VibeTribe
- 2,747 posts
Posted 27 July 2012 - 12:48 PM
hey nancy baby!
glad to hear the kitty's improving! ♥
was so very glad to get to hang with you a little at vibes! ♥♥
sending good vibes to you armpit!! ♥♥♥
(ok, that just sounds weird!)
wishing you the best feelings, and healthy vibes i can muster. you rock, girl!!!
glad to hear the kitty's improving! ♥
was so very glad to get to hang with you a little at vibes! ♥♥
sending good vibes to you armpit!! ♥♥♥
(ok, that just sounds weird!)
wishing you the best feelings, and healthy vibes i can muster. you rock, girl!!!
#1888
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- VibeTribe
- 44 posts
Posted 27 July 2012 - 06:19 PM
Dear nancykind~ ~ Thank You for having me in your company under the elm~!~ This is my first post back in about three years, so's I'm a bit rusty, and also I'm not very good at this... It was so wonderful to see you, and I look forward to our next encounter! Cassady sounds very loving~ ~ I'm happy to hear that she's spending less time in the closet 
It's a beautiful thing to share unconditional love with a pet~ ~ Good Luck with the Aloe Harvest~ You and Cassady are in my thoughts~ ~ I wish you all the best, and I know that you have all the love that you need to get through these hard & rough times!
Sooner, Love PG
~ Thank You for having me in your company under the elm~!~ This is my first post back in about three years, so's I'm a bit rusty, and also I'm not very good at this... It was so wonderful to see you, and I look forward to our next encounter! Cassady sounds very loving~ ~ I'm happy to hear that she's spending less time in the closet It's a beautiful thing to share unconditional love with a pet~ ~ Good Luck with the Aloe Harvest~ You and Cassady are in my thoughts~ ~ I wish you all the best, and I know that you have all the love that you need to get through these hard & rough times!Sooner, Love PG
#1889
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- VibeTribe
- 959 posts
#1892
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 30 July 2012 - 06:23 PM
thanks all. 4 down 29 to go. some stinging still, that's it. they're weird. too many radiation waves floatingn around over there maybe 
there are 3 radiologists, all on equal footing as far as handling my case, and i will see i'm told that all 3 of them in short order.
my initial visit was with dr hellman and he told me the only thing i can put on the skin is 100% aloe. i didn't ask about aloe, that's what he said and i made sure i understood all that he said, not just that
last week the nurse gives me aquaphor samples, and tells me i should use that once a day and that i can use vaseline or any other petroleum based product, sunscreen, or aloe.
today the nurse says "you're using the aquaphor once a day, right?" as she hands me 5 more sample tubes. then dr dolinsky comes in and says i shouldn't be putting anything on until after the skin has a visible reaction to the radiation.
gah.
love youuu!!!
but you all make me smile.
my sister's in town with all the kids and the husband, they are staying with my dad though, not at my house. i don't have the room - OR the energy - to deal with the whole family!
4 down 29 to go. some stinging still, that's it. they're weird. too many radiation waves floatingn around over there maybe there are 3 radiologists, all on equal footing as far as handling my case, and i will see i'm told that all 3 of them in short order.
my initial visit was with dr hellman and he told me the only thing i can put on the skin is 100% aloe. i didn't ask about aloe, that's what he said and i made sure i understood all that he said, not just that
last week the nurse gives me aquaphor samples, and tells me i should use that once a day and that i can use vaseline or any other petroleum based product, sunscreen, or aloe.
today the nurse says "you're using the aquaphor once a day, right?" as she hands me 5 more sample tubes. then dr dolinsky comes in and says i shouldn't be putting anything on until after the skin has a visible reaction to the radiation.
gah.
love youuu!!!
but you all make me smile.
my sister's in town with all the kids and the husband, they are staying with my dad though, not at my house. i don't have the room - OR the energy - to deal with the whole family!
#1894
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- VibeTribe
- 2,875 posts
Posted 30 July 2012 - 08:44 PM
oh my nancy that would drive me nuts. is there some sort of support group or something you can join, not just for mental support, but for times like this when you just want a straight answer you can trust? just a thought, also i realize i havent read the thread so you might already be a part of something like this.
good luck! think of you often!
good luck! think of you often!
#1897
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 31 July 2012 - 02:11 AM
yeah, i'm not good with conflicting information on a GOOD day!
thanks again. i love you too Summer.
when i got home from yoga tonight i was hot and sweaty and the left side of my chest was much redder than the right - almost in that perfect square that hellman showed me originally.
( there's my sign!
)
but yikes. it's happening.
goodness knows i've been looking at lots of other craptacularly crappy side effect crap for some time now - not to even mention the scars from the surgeries - so i do not know why this particular crap is freaking me out, at this point.
just more weirdness!
thanks again. i love you too Summer.
when i got home from yoga tonight i was hot and sweaty and the left side of my chest was much redder than the right - almost in that perfect square that hellman showed me originally.
( there's my sign!
)but yikes. it's happening.
goodness knows i've been looking at lots of other craptacularly crappy side effect crap for some time now - not to even mention the scars from the surgeries - so i do not know why this particular crap is freaking me out, at this point.
just more weirdness!
#1898
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- VibeTribe
- 502 posts
Posted 31 July 2012 - 02:19 AM
Maybe, because..........
"There are known knowns; there are things we know that we know.
There are known unknowns; that is to say there are things that, we now know we don't know.
But there are also unknown unknowns – there are things we do not know, we don't know." ---Donald Henry Rumsfeld
"There are known knowns; there are things we know that we know.
There are known unknowns; that is to say there are things that, we now know we don't know.
But there are also unknown unknowns – there are things we do not know, we don't know." ---Donald Henry Rumsfeld
#1900
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 31 July 2012 - 12:21 PM
thank you.
there's just something about lying there.... their numeric conversations, ( not that the two men aren't perfectly nice as people who are poisoning me on a daily basis go... ) drawing on me every damn freaking day wtf did you put tattoos on me for then !???!?? being shifted but not being able to move..... the cold thing they lay on me that they always say they try to warm first sorry, and the way they scurry off into their nice safe room before they flip the switch and the machine moving around over and beside me and that whiny fucking NOISE that it makes when it's beaming me. gaaaaaaaaaaahhhhhh!!!!!
there's just something about lying there.... their numeric conversations, ( not that the two men aren't perfectly nice as people who are poisoning me on a daily basis go... ) drawing on me every damn freaking day wtf did you put tattoos on me for then !???!?? being shifted but not being able to move..... the cold thing they lay on me that they always say they try to warm first sorry, and the way they scurry off into their nice safe room before they flip the switch and the machine moving around over and beside me and that whiny fucking NOISE that it makes when it's beaming me. gaaaaaaaaaaahhhhhh!!!!!
