have we mentioned lately how MUCH cancer SUCKS!?!?!?!??!?!!?!??!?!?!?!!
Started by
nancykind
, Feb 01 2012 03:58 AM
2537 replies to this topic
#1754
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- VibeTribe
- 5,564 posts
- LocationDirectly south of Seaside Park..across the sound
Posted 02 July 2012 - 02:17 PM
Good news lady, good news!
Do you think you will be able to ride your bike at Vibes this year?
Do you think you will be able to ride your bike at Vibes this year?
thank you!
#1764
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- VibeTribe
- 2,747 posts
Posted 03 July 2012 - 01:33 PM
omg that picture is toooo adorable!
i don't know about riding a bike. i have to get it fixed anyway, something's wrong with the brakes
brakes are overrated!
hey hey! hope you doing well! any plans for the 4th? we have none! we'll think of something fun to do....like mow the lawn, and stuff like that. fun fun!! not really. we'll do some fun stuff too. can't wait to see you and all these other freaks in a couple weeks!!!!
#1767
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 03 July 2012 - 11:24 PM
I AM DONE WITH CHEMMOOOO!!!!!!!!!!!!!!!!!!!!
8 down, NONE TO GO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
and it sooooo weird, Adam - truly!!! thanks for all the good vibes, probably won't make it on saturday Sarah but i still have my lawn ticket.
my numbers were just okay today, good enough for a treatment but by the narrowest margin i've had. the PA put me back on the $%^&*$#@$%^%#$the antibiotic to try to push the white cell count up without having to resort to another neulasta shot. i was on it for 3 weeks and off of it for less than one week.
my acupuncturist is on vacation this week so i'm not getting any help with any of the pain or cells this round so i don't want to add the pain of neulasta to the pain of the taxol, which is the worst of the two. it's going to be a really interesting round, no matter what - i wonder if i'll get a lot of baseball bat whacks again....
the swollen feet and ankles are their main concern currently, they indicate a possibility for deep vein thrombosis - bloodclots deep in the big veins of the leg. they can travel to the lungs most commonly, and then it would be an embolism which is what they went looking for last week. the only recommendation is elevation and they gave me some things to watch for at which point i'd have to call in. they are staffed on the weekends and holidays, although my doc isn't the one on call this week/end, he's on his 3rd vacation in the 4 months i've been seeing him.
PA thinks i miiiiiiight keep the fingernails but just barely and only if i don't whack them, especially in any way that causes even a slight lifting. so it's getting a bit tricky to do things at all, even normal things. interesting. the two big toenails are toast, especially the left one, she agrees. the other toenails look okay..... the pinky one is turning color a bit but i think it's too late for it to go very far.
that's about it for today. i'm tired and i'm reclining and resting tonight. thanks to Kerri i have some yummy eggplant parm i'm going to heat up for dinner tonight.
8 down, NONE TO GO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
and it sooooo weird, Adam - truly!!! thanks for all the good vibes, probably won't make it on saturday Sarah but i still have my lawn ticket.
my numbers were just okay today, good enough for a treatment but by the narrowest margin i've had. the PA put me back on the $%^&*$#@$%^%#$the antibiotic to try to push the white cell count up without having to resort to another neulasta shot. i was on it for 3 weeks and off of it for less than one week.
my acupuncturist is on vacation this week so i'm not getting any help with any of the pain or cells this round so i don't want to add the pain of neulasta to the pain of the taxol, which is the worst of the two. it's going to be a really interesting round, no matter what - i wonder if i'll get a lot of baseball bat whacks again....the swollen feet and ankles are their main concern currently, they indicate a possibility for deep vein thrombosis - bloodclots deep in the big veins of the leg. they can travel to the lungs most commonly, and then it would be an embolism which is what they went looking for last week. the only recommendation is elevation and they gave me some things to watch for at which point i'd have to call in. they are staffed on the weekends and holidays, although my doc isn't the one on call this week/end, he's on his 3rd vacation in the 4 months i've been seeing him.
PA thinks i miiiiiiight keep the fingernails but just barely and only if i don't whack them, especially in any way that causes even a slight lifting. so it's getting a bit tricky to do things at all, even normal things. interesting. the two big toenails are toast, especially the left one, she agrees. the other toenails look okay..... the pinky one is turning color a bit but i think it's too late for it to go very far.
that's about it for today. i'm tired and i'm reclining and resting tonight. thanks to Kerri i have some yummy eggplant parm i'm going to heat up for dinner tonight.
#1778
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 04 July 2012 - 08:54 PM
it sure does and i know you know how much my heart is with you every day.
i see the radiation oncologist tomorrow at 8:30, my dad wants to go with me but he used the word 'curious' so i think learning more about the scientific calculation of it all is the draw for him. we are going out to breakfast first, he's all excited to try this new place that opened in s. glens falls.
the PA thought that my first simulation will be friday, yikes, my second one next week, and then we wait the 4 weeks for me and my white cells to recover from the chemo. week of 7/30 i "hope".
yikes!
i see the radiation oncologist tomorrow at 8:30, my dad wants to go with me but he used the word 'curious' so i think learning more about the scientific calculation of it all is the draw for him. we are going out to breakfast first, he's all excited to try this new place that opened in s. glens falls.
the PA thought that my first simulation will be friday, yikes, my second one next week, and then we wait the 4 weeks for me and my white cells to recover from the chemo. week of 7/30 i "hope".
yikes!
#1786
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- VibeTribe
- 2,747 posts
Posted 05 July 2012 - 02:33 PM
you made it thru all hose chemo treatments, and now.....you've got no more!!!! yayyyyyy you!!!!!
hope all goes well with the other crap you have to contend with. you're still in our thoughts and prayers, and we're still sending you all kinds of good vibes! see you in two weeks! ♥
hope all goes well with the other crap you have to contend with. you're still in our thoughts and prayers, and we're still sending you all kinds of good vibes! see you in two weeks! ♥
#1787
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 05 July 2012 - 02:46 PM
sounds good to me, elder!
just got home from the radiation oncologist, whoooooo, lotta information! i don't see how i possibly could have done that consult during a treatment. dr hellman is my main guy, he seems........... fine. the nurse said something about good thing i had brought someone with me because of all the info i was going to get and then hellman is completely weirded out by my recorder! he asked me to turn it off and when i said it wasn't on yet, he said his schpiel would change and he'd be more detailed if the recorder was on and that i should be aware of that.
so i said okayyyy, and hit the on button. wtf. 
first dr i've come across who cared even in the slightest, about its existence.
so there's a few freaky side effects, but the first 3 weeks or so should be reasonable uneventful. my cat scan and first simulation is tomorrow at 8am, and i'll get my tattoos at that time. i can't believe my first tattoos are going to be radiation markers.
if they need to do another simulation, they'll have time next week and then my dry run will be the 24th or 25th and and we should start on the 25th or 26th. yikes. i'll have 33 rounds once daily, monday thru friday, so my last round should be september 10th or 11th..... yikes.
my sister will be back to go to my first one with me, i'm glad about that.
thanks from the bottom of my heart and soul, for all the good wishes. they mean more than i can ever express, truly.
just got home from the radiation oncologist, whoooooo, lotta information! i don't see how i possibly could have done that consult during a treatment. dr hellman is my main guy, he seems........... fine. the nurse said something about good thing i had brought someone with me because of all the info i was going to get and then hellman is completely weirded out by my recorder! he asked me to turn it off and when i said it wasn't on yet, he said his schpiel would change and he'd be more detailed if the recorder was on and that i should be aware of that.
so i said okayyyy, and hit the on button. wtf. first dr i've come across who cared even in the slightest, about its existence. so there's a few freaky side effects, but the first 3 weeks or so should be reasonable uneventful. my cat scan and first simulation is tomorrow at 8am, and i'll get my tattoos at that time. i can't believe my first tattoos are going to be radiation markers.
if they need to do another simulation, they'll have time next week and then my dry run will be the 24th or 25th and and we should start on the 25th or 26th. yikes. i'll have 33 rounds once daily, monday thru friday, so my last round should be september 10th or 11th..... yikes.
my sister will be back to go to my first one with me, i'm glad about that.
thanks from the bottom of my heart and soul, for all the good wishes. they mean more than i can ever express, truly.
#1788
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 05 July 2012 - 03:09 PM
oh yes, i'll have a lifetime increased risk of skin cancer called sarcoma. where i already have a family history of melanoma. and this is in addition to the risk of bladder cancer from the AC, and leukemia from the taxol.
sheesh!!!
sheesh!!!
#1794
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 06 July 2012 - 10:50 AM
oh yes, i'll have a lifetime increased risk of skin cancer called sarcoma. where i already have a family history of melanoma. and this is in addition to the risk of bladder cancer from the AC, and leukemia from the taxol.
sheesh!!!
AAAAAND the 50% chance of metastisis within the first 5 years!!
did i have to have triple negative breast cancer??? and let's not forget that colon cancer that's so prevalent in my family.
having a tough start today, can you tell?
it'll get better... ugh. i'm going to take a shower, i have to be at the hospital at 8.
#1796
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- VibeTribe
- 8,116 posts
Posted 06 July 2012 - 11:51 AM
Much love to you Nancy!!
I know you're not making Phish this weekend, but is there a chance you'll make it over to Wende's for a bit on either Sat or Sun??
If that's not in the cards, let me know if you'd be up for a small contingent of boardies coming to visit you at home.
You have my number. Call/text me and let me know what you're up for and what you can handle.
I know you're not making Phish this weekend, but is there a chance you'll make it over to Wende's for a bit on either Sat or Sun??
If that's not in the cards, let me know if you'd be up for a small contingent of boardies coming to visit you at home.
You have my number. Call/text me and let me know what you're up for and what you can handle.
#1798
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- VibeGuide
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- 14,149 posts
VibeGuide
Posted 06 July 2012 - 04:36 PM
Much love to you Nancy!!
I know you're not making Phish this weekend, but is there a chance you'll make it over to Wende's for a bit on either Sat or Sun??
If that's not in the cards, let me know if you'd be up for a small contingent of boardies coming to visit you at home.
You have my number. Call/text me and let me know what you're up for and what you can handle.
i wish i could picture it in the cards but am not currently. i'm already percocetin'.
if anyone wants to come by here though, i would love it if anyone has the time. everyone should bring something to swim in, if they like.
