Can I whine in here?
Posted 18 January 2009 - 10:33 AM
My energy levels are so low. I'm so tired all the time. I can't concentrate, I can't think straight, I can't stay awake and I can't sleep.
I'm getting frustrated. And I'm loosing the little control I had over this pain quickly.
I'll be meeting with some new docs soon and I've been researching a personal game plan that I hope the docs will agree to (and heck maybe supplement with all their smarts) so I can get back on track.
But for now - I just need to whine, scream and cry. I'm tired of hurting.
Posted 18 January 2009 - 01:33 PM
I know a few people who have random weird health issues so I might be able to get you intouch with someone howm really understands you issue
And boardies are always great for a little pep talk
Posted 18 January 2009 - 05:17 PM
Posted 18 January 2009 - 07:32 PM
It was about 20 years ago I flushed all my meds down the toilet. I've been maintaining balance by exercise and weight management. I've never been without pain, but I've always been able to keep it so it didn't interrupt my life too much.
So - I'm heading back to the docs. I need to get my foot looked at as I've read this pain can occur if it was broken and didn't heal right. Hopefully, thats all it is and I can get it fixed (at this point surgery would be a blessing). I also want to get new scans of my neck and back as I have some bludging disks and its in those areas where the pain has increased significantly. Once we've ruled out that there is nothing new thats wrong then I'm going to head back to PT to get to a point where I can feel better exercising independantly again. PT has helped in the past when I've gotten off track.
I've joined a support group (online) but man - I know what this pain is like but some of those people just don't get that you will always hurt and you've got to just push through and fight, fight, fight.
I'm always open to natural options as I don't like taking meds and will not take them as long as the possible side effects and risks remain so nasty. Plus, I could easily lose myself to pain meds so I avoid them too. I've been reading a lot about magnesium lately.
So that's the short of it.
Thanks for letting me whine and for your support. I'll let you know as things go along.
Posted 18 January 2009 - 08:36 PM
Posted 18 January 2009 - 11:06 PM
establishing really regular sleep patterns. to bed at the exact same time every night. i know it's hard to sleep but deep relaxation (or however close to it you can get) as a substitute. i would recommend some kind of meditation/breathing exercises to help you learn that.
swimming. for some reason it is THE exercise to practice when you have fibromyalgia.
diet. this one is difficult. of course the obvious health risks: sugar, alcohol, caffeine (the fun stuff) along with carbonation of any kind and additives/preservatives. after that i've heard all kinds of things. the weirdest thing a woman told me one time was that she quit eating garbanzo beans and her symptoms disappeared completely within a week. (i've never heard anything else close to that radical though!)
herbs: of course you want to do nervines and (before bed) sedatives. one of the best nervines is skullcap herb because it helps to repair the nervous system as well as sooth it. another wonderful herb is oatstraw. it also has a lot of calcium in it, which could help. some great "sleep" herbs are; valerian, hops, chamomile. good herbs for pain include these along with jamaican dogwood and kava kava root (which is also a "euphoric" so not recommended before bed!)
of course, deep tissue massage or even relaxing massage, regularly, is key. everyone should treat themselves to a massage regularly. the arguement i get is: but it's so expensive! but regular massage reduces stress levels, increases immune system function, increases circulation (leading to greater health) and better enables all the body systems to "cope" with modern life. all these things end up costing you less in the long run!
Posted 19 January 2009 - 07:11 PM
All best wishes for acceptable pain management.
Hope for love, understanding and patience from all those with whom you share your life.
Posted 25 January 2009 - 04:41 AM
Posted 31 January 2009 - 02:47 PM
Posted 16 March 2009 - 09:12 PM
Posted 24 March 2009 - 04:49 PM
I hope you are feeling better soon.
Posted 25 March 2009 - 08:42 PM
hoping you find relief